lucas - although we are relieved you are a healthy baby boy, you've had your fair share of issues -- yeast infections, bacterial infections, eczema, and more...and of course your port wine stains that made me cry taking you home from the hospital. you were born with birthmarks called port wine stains (because of their color) all over your body - your left arm, your right leg, your back, your shoulder, and your groin. the doctor said we should be relieved that there's nothing on your face and that you are a boy and for that, yes, we are thankful, but i still wish you didn't have to deal with these stains covering your body- birthmarks that will be exposed when you wear a t-shirt or shorts - when you go swimming or when it's hot -- we've talked and met with tons of doctors to learn what the cause is, what might happen in the future, the treatment options, etc. last month, we did a test on your arm and leg to see if laser treatment might lighten your port wine stains. we revisit the doctor in 4 months to see if we'll take the next step of treating your whole body. based on what i can tell, it doesn't look like the laser treatment did anything, which makes me sad. but at the same time, the birthmarks are starting to look natural on you -- if only we knew how much these birthmarks would affect you in the future? no matter what we decide to do, mommy and daddy promise to raise you with strong self-confidence. the only unknown is that we can't control what mean kids might say -- i wonder what you would want us to do when you're 17...
the next health issue is your circumcision. your circumcision was not perfect, and you ended up getting an infection b/c of it. the urologist is recommending that we re-circumcise your penis which breaks my heart because i don't want you to have to go through that yet again. mommy and daddy decided to revisit the issue in a couple of months to see if you get more infections. the doctor says there are social impact issues, just like your port wine stains.. yet again, more social impact issues... i wonder why God has put so many obstacles in your way... part of me thinks that you are going to be someone who does something amazing because you will face so many adversities. i know that these things will not break you, but make you stronger. i hope we make the decisions that you support, when you're older...
1 comments:
Just wanted to say that your son is gorgeous and you sound like a lovely Mummy. I am sure whatever happens that when your beautiful son is older he will know you did all that you could for him. We have a one year old daughter who has a PWS on her face and I worry all the time about how she will cope when she starts school etc and hope that we can teach her through life to be confident and proud of who she is.
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